I'm trying to figure out how to make sure that this last IVF cycle we're doing is our best cycle. There are so many options out there about alternative therapies, new therapies & new age therapies. I feel paralyzed, unable to rationally make a decision for fear that it is not the "right" decision and therefore will not give me the baby that we so desperately want.
One of the things I've been trying to decide whether to add Saizen to my protocol this time. Although he has recommended this for other patients, Dr. Sch did
not recommend it for me but is willing to add it to my protocol if we want (yeah - thanks for expressing your $30,000 opinion!). There is no rhyme or reason why it is recommended to some patients and why it is not to others (I asked my nurse to find out what criteria he uses to include it in someone's protocol and that is what she told me after discussing it with him). He keeps saying that drugs like Saizen have not yet been proven on a scientific basis to positively impact IVF outcomes and that it may or may not help...he doesn't know. So, the decision rests with me and now I get to play doctor and decide whether I will have regrets or not if we do/do not add it to our protocol. If it can help, great but the fear that I have is that it may not help but hurt our outcome. That fear isn't based on anything - just my irrational thinking rolling around in my head. How many times have I gotten to the end of something without achieving the expected response to have someone tell me "well, it wasn't
supposed to happen like that - you're definitely the exception". I don't want to be a Saizen exception with our last try.
My DH is tired of grasping at straws and has voted in favour of not including it. Me? I'm still on the fence. I have no hard, scientific evidence to base any decision on so I'm just reading anecdotal evidence from others who have been put on Saizen. People have been reporting that egg quality has been improved which results in a greater number of higher quality embryos but again, this is based on anecdotal evidence of just a small few.
Another thing I've stumbled across late yesterday night was a fertility retreat called "
The Fertile Soul Retreat" run by the author of The Infertility Cure, Dr. Randine Lewis. I was
stunned when I went to their website and lo and behold, wasn't there a quote there by MY OWN DOCTOR...
"I have treated patients for years who have also utilized Randine's alternative medicine approach to infertility in parallel with our IVF or other fertility technologies. It continues to amaze me how many of these women are successful at achieving a pregnancy despite having very difficult problems. Many have test results that suggest their prognosis is nil, yet with Randine's help they keep beating the odds and realizing their dream of having a baby. I would encourage any patient who is pursuing pregnancy to take a comprehensive approach to their care. The Fertile Soul's advice and treatment is an important part of such a plan." ~Dr. William Schoolcraft, Colorado Center for Reproductive Medicine~Should I go? I can squeeze their next session in (Feb 9th to Feb 12th) before my next IVF but it's $3000 for the 5 day session but at this point, money is really tight. Besides, who's to say that this is going to work for me? I've already taken a mind/body fertility program and even though the success rate of graduates going on to get pregnant and have babies was boasted to be a whopping 85%, I still ended up on the wrong side of that percentage. Do you know how much it sucks being one of two people out of a group of 11 that did NOT have a baby?
The seductive part of Dr. Randine's approach is that she believes that for most, IF is caused by imbalances of the body and that by putting your body back into balance, it can naturally conceive. For people like me who have been "diagnosed" with unexplained, do you know how appealing that sounds to me? And it's done through diet, exercise and herbal supplements, not drug therapy. It's more natural, holistic and addresses not the symptom (infertility) but the root cause.
I don't know what to do...even if I did end up going, is it something that can have an impact on the cycle we're planning on doing next month? Or would it be beneficial since the important part would be in preparation for ET, which is at least 3 months out? You see, I've done Chinese herbs before and acupuncture and I did NOT notice any difference. Granted, it all depends on the practitioner that you have and how good they are in diagnosing and treating the problem. So far, I've seen two Chinese herbalists/acupuncturists. The first one had terrible communication - she didn't tell me what was going on or my diagnosis, wrote all of her notes in Chinese, stuck a needle so far into my back that I freaked out and could still feel that point days later and she really gave me a phobia about acupuncture. The second herbalist/acupuncturist I saw I really liked and she was warm and friendly...but I don't think she knew what she was doing regarding IF and I didn't notice any change in anything during treatment.
I'm not convinced that going to this $3000 retreat is the answer. However, I did notice on the Fertile Soul website that there is a TCM doctor here in my city that trained with Dr. Lewis and is affiliated with her program...maybe I'll go in to see her. Fees for an initial consultation with her of $120 is a heck of a lot cheaper than $3000.
I always wonder though (and I am really bad at making decisions) how you don't think about the path not taken. For example, we chose not to pursue our immune diagnosis, partly because it is extremely controversial and we couldn't afford to do the treatment for it in addition to IVF. How do you not wonder at the end of it all if you made the right choice when the one you chose still did not get you to baby? When do you know when enough is enough?
People often tell you that you are ready to move on when the alternative no longer looks so scary. I feel that way about adoption - it no longer is so scary and I am at least willing to entertain the idea whereas before, I would completely plug my ears while singing "la la la la la" so I would hear nothing about it. How do you stop yourself from wondering what would have happened had you chosen differently?
Sorry about all the rambling...I guess I have to be a grown up and make a decision about what we're going to do. My DH is against the Saizen so it makes it hard for me to go against the opinions of both him and my doctor. As for the retreat, that's also a no go from a purely financial point of view. I think I will, however, make an appointment to see that local TCM doctor and maybe that will be my stepping stone to an entirely new path.